The Breast Cancer Care of WA (BCCWA) has formed a partnership with Edith Cowan University (ECU) to develop this research project entitled “A comparison of social network sites and online communities for the provision of advice, support and information: Guidelines for health professionals”. The research involves the creation of a strong online community website that will provide advice, information and support for people who have been diagnosed with breast cancer and their families, friends and supporters.
As a member of this community you will be able to login to the secure, members only, website, to share your experiences with other people who understand the experience of breast cancer or who might benefit from your understanding. This unique site will enable you to participate in a way that suits you: you can chat online, participate in discussion groups, host blog pages, listen to podcasts, and post videos or photos.
During the research project a Specialist Breast Care Nurse will be introduced to provide advice, information and support for a period of 3-6 months, and links to relevant breast cancer information sites will be available.
As a website member, you may be invited to attend a focus group(s), interview(s) and/or to complete an online survey(s) or similar tasks during the project.
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Statement by Participant
I have been invited to participate in research about online social networks and communities for people who have been diagnosed with breast cancer, their families and friends and the integration of professional information, advice and support giving.
I have read the foregoing information and I have had the opportunity to ask questions about it and any questions I have asked have been answered to my satisfaction. I consent voluntarily to be a participant in this study.
By registering as a member of the support website www.breastcancerclick.com.au I am signifying my consent to participate in the research project
